Showing posts with label mri. Show all posts
Showing posts with label mri. Show all posts

Wednesday, 21 December 2011

Head in the oven

Different people get different mileage with their drugs.

Me? I have zero tolerance it seems. If I stand near cigarette smoke I'm ill. If I drink the smallest amount - I'm ill. If I take medication ...

My Soiree in to chemical treatment has not faired well. Cabergoline wiped me out and now I find that Quinagolide does the same.

The recommendation with Quinagolide is to take it just before bed with food. Why just before bed? Because, for me at least, 30 minutes to 1hr later and I'm a zombie. Trust me, I would not be safe behind the wheel of a car immediately after taking this drug. When I sleep - it's like I'm a dead man. My wife tried to rouse me the other night and, apparently, I would not wake up no matter how loud she shouted or how hard she poked me in the ribs. This isn't great considering that I'm on call one week in three.

*ring ring .. ring ring*

Telephone: "Hello - we have a problem with a virtualisation platform that appears to have become isolated and gone split brain - we need you to instigate the disaster recovery plan"

Me: "ZZZzzzzzzzzzzzzzzz"

What compounds the problem is that I struggle to wake up and I'm not capable of engaging my brain around technical issues before lunchtime. It's like living in a fog. With a career that demands the best out of me at all times - knowing the schedule of work that I have lined up for 2012 - and with a wife / kids to feed, mortgage & bills to pay - I cannot continue with Quinagolide.

I'm only on 75 micrograms .. still about a third of the expected dose. When I speak to the consultant in the new year I'm going to be straight with him. The likely outcome is that I'll be having radiation therapy followed by an operation. They've already booked an appointment to explain the procedure - so they must have expected this outcome.

I have an MRI scan booked at the start of the new year and a review the week after. I suspect that the prolactin has escaped again. Damn this prolactinoma.



Friday, 14 May 2010

14th May - 9am Wake Up Call

14th May - 9am Wake Up Call

9am and I'm playing with my kids as we all get washed . changed and ready for the day. The phone goes. It's the hospital. Can I come in today please and meet with the consultant at 3:30 pm. Just like Obama - 'Yes we can'.

That was quick. Either the hospital have a government target to hit .. or they've found something worth dragging me in for.

I will edit this with the results of the meeting later today / tomorrow.

13th May - MRI Scan for a man called Dan

13th May - MRI Scan for a man called Dan


The hospital didn't hang around too long before getting me booked in for an MRI scan - which is just as well because I'm an impatient SoaB. Appointment time - 8am.


If the doctor is right, they will find an adenoma .. or more accurately a prolactinoma. This will explain the chemistry issues that have caused extreem tiredness, lethargy, general apathy toward everything that isn't a life or death matter. A small part of me feels grateful that they've found 'something' because I was beginning to think that I was becoming what we here in England call 'a lazy arse'. The only other explanation being that my couch had formed a gravity well with a fixation for my backside!

With any luck something will be found (otherwise it's a witch hunt to find the cause of the issues) and it will be an ickle bump on the pituitary that we can flatten with a barrage of pills. I've trawled the net and found lots of people with tumours around the 5mm mark that have caused these kinds of issues - and that is my best hope at the moment. Worst case, there will be something egg sized, in which case this blog will lose the comedy element and I will be looking for volunteers to undertake a 'Fantastic Voyage' like adventure around my insides and zap it with a ray gun. Steady shooter only need apply.

When I turn up at the Great Western Hospital at 8am sharp, I'm asked to complete and verify a questionnaire to basically confirm that I'm not over 33 stone and carrying any metal items! Fat? because there is only so much weight the MRI trolley can handle I guess. And metal? Because you don't want loose metal object hanging about next to the magnetic forces that the MRI scanner will generate. They were even worried about previous metal splinters I may once have had!

After being taken in to the MRI unit and putting everything in the locker, I had to sit for a few minutes and listen to the scan operator bollock the cleaner for mopping the room unattended. I'm sure it was for his own good but I don't think the cleaner really understood the risks and I half expected him to react by inserting the mop (you can fill in the blanks here).

There's not a huge amount you can say about the MRi experience though. I was put on the trolley and given a set of 1970's cans to cover my ears. In my left hand was a panic alarm that looked like a sex toy from the same era. The trolley is loaded in to the scanner and I go in head first. "Don't move for the next ten minutes" says the operator as he legs it out of the scanner room.

Silence.

*Click click click*

Silence

*BUZZZZZZ*

Blimey .. it went on for double the length of time and the only way I can describe it is that it was like having my head strapped to a Vespa whilst being forced to listen to Blake's 7 at an incredibly loud volume. The hardest part is not moving. There is no gradient between silence and megaton magneto buzzing episodes and, quite frankly, it's bloody hard not to jump out of your skin. Towards the end the ear defenders are literally jumping up and down on my ears - I'm assuming in response to the magnetic fields.

Eventually it stops which is just as well because the novelty has worn off and all I really want is a cup of tea and then to be on my merry way.

Outside the scanner and the first thing the operator says to me is 'do you have a follow up appointment booked?' Hmm did I detect any urgency in that question - or am I just naturally being quite paranoid. Probably the latter.

I can see pictures of a brain in all it's MRI glory but they won't let me let close enough to see the pictures in detail. Apparently this is because I may accidently see another patients data - in which case they will have to kill me! Honestly - I ask you! I know where my pituitary is - and all I want to do is see how badly out of shape it is. This is far from the theme park experience I was expecting. Like Alton Towers - I thought I would get a framed snapshot of my face, twisted in horror, during the ride .. errr I mean scan. A T-Shirt and mug with a photo transfer cross section on my brain on it ... a CD with the MRI scan so that I could upload my brain to you tube and share the fun with my friends. But no! I will have to talk to my GP and pay some money to get a copy of the scan. that was all he would say.

About this point it occurs to me that I don't have a clue what happens next. Eventually I call the surgery who tell me to visit them in 10 days to discuss the results with my GP. Arghhh waiting! I want to know now! In fact .. I don't want to know now truth be told because I imagine no news is good news in matters like this.

Just for the record (captains log .. stardate etc etc) I've been feeling extra tired this week. I've also had a cloudy dull headache for the last three days. I'm assuming this is a psychosomatic episode brought on because of what they're testing me for.